SOCIAL SCIENCES ETHICS TRAINING
References
References by Topic
Below is a list of references that we have drawn on to create this ethics module, organized by topic.
Ethics training:
- NIH Office of Extramural Research, n.d. “Protecting Human Subjects Research Participants” (ethics training module). http://phrp.nihtraining.com/users/pdf.php . Available as PDF: http://phrp.nihtraining.com/users/pdf_phrp2008july15.pdf, retrieved 11 February 2009.
Research ethics protocols:
- The Nuremberg Code, 1949. "Trials of War Criminals before the Nuremberg Military Tribunals under Control Council Law No. 10", Vol. 2, pp. 181-182. Washington, D.C.: U.S. Government Printing Office. Available online at http://www.hhs.gov/ohrp/references/nurcode.htm, retrieved 11 February 2009.
- Declaration of Helsinki, 2008. Available online at http://www.wma.net/e/policy/pdf/17c.pdf , retrieved 11 February 2009.
- The Council for International Organizations of Medical Sciences (CIOMS) / World Health Organization (WHO) International Ethical Guidelines for Biomedical Research Involving Human Subjects, 2002. Geneva: CIOMS/WHO. Available online at http://www.cioms.ch/frame_guidelines_nov_2002.htm, retrieved 11 February 2009.
- EU Clinical Trials Directive, 2001. Official Journal of the European Communities. Available online at http://www.eortc.be/Services/Doc/clinical-EU-directive-04-April-01.pdf, retrieved 11 February 2009.
- The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (NCPHSBBR). The Belmont Report: Ethical Principles and Guidelines for the protection of human subjects of research, 1979. Available online at: http://ohsr.od.nih.gov/guidelines/belmont.html, retrieved 11 February 2009.
- Australian Government, National Health and Medical Research Council, and Australian Research Council, 2007. National Statement on Ethical Conduct in Human Research. Available online at http://www.nhmrc.gov.au/publications/synopses/e35syn.htm, retrieved 11 February 2009.
Tuskegee Syphilis Experiment:
- Borgna Brunner, n.d. “The Tuskegee Syphilis Experiment.” Tuskegee University, available online at http://www.tuskegee.edu/Global/Story.asp?s=1207586, retrieved 11 February 2009.
- James H. Jones, 1993. Bad Blood: The Tuskegee Syphilis Experiment. Free Press.
- Phillip J Hilts, "VA Hospital Is Told to Halt All Research." New York Times, 25 March 1999
Debates over the ethics of anti-retroviral therapy (ART) trials:
- Peter Lurie and Sidney M. Wolfe, 1997. "Unethical trials of interventions to reduce perinatal transmission of the human immunodeficiency virus in developing countries." The New England Journal of Medicine 337(12):853-856.
- Marcia Angell, 1997, "The ethics of clinical research in the Third World." The New England Journal of Medicine 337(12):847-849
Critical perspectives on ethics regulation and the social sciences:
- Rena Lederman, 2006. “Introduction: Anxious borders between work and life in a time of bureaucratic ethics regulation,” and “The perils of working at home: IRB ‘mission creep’ as context and content for an ethnography of disciplinary knowledges.” American Ethnologist 33(4): 477-491.
- Daniel Bradburd, 2006. “Fuzzy Boundaries and Hard Rules: Unfunded Research and the IRB.” American Ethnologist 33(4): 492-498.
- Peter Pels, 1999. "Professions of Duplexity: A Prehistory of Ethical Codes in Anthropology." Current Anthropology 40(2): 101-114.
- Carolyn Fluehr-Lobban, 2008. "Anthropology and ethics in America’s declining imperial age." Anthropology Today 24(4): 18-22.
Stanford Prison Experiment:
- BBC documentary, "The Stanford Prison Experiment," 2002.
- Stanford Prison Experiment website [http://www.prisonexp.org/]
- "Quiet Rage: The Documentary." [http://www.prisonexp.org/video.htm]
- “The Lucifer Effect: Understanding How Good People Turn Evil (Random House, 2007.)
Tearoom Trade:
- F. Desroches, 1990. Tearoom trade: A research update. Qualitative Sociology, 13(1), 39-61.
- Laud Humphreys, 1970. Tearoom Trade: Impersonal Sex in Public Places, Aldine Publishing Co.
- Peter M. Nardi, 1995. “’The Breastplate of Righteousness’: Twenty-Five Years After Laud Humphreys’ Tearoom Trade: Impersonal Sex in Public Places.” Journal of Homosexuality 30(2):1-10.
- Charlotte Allen, 1997. "When Sociologists Deceive Their Subjects." Lingua Franca, available online at http://linguafranca.mirror.theinfo.org/9711/9711.allen.html, retrieved 11 February 2009.
- David Bianco, 1999. "Tearoom History." Available online at PlanetOut.com (http://www.planetout.com/news/history/archive/10251999.html), retrieved 11 February 2009.
- Lee Edelman, 1993. "Tearooms and Sympathy, or, The Epistemology of the Water Closet," in The Lesbian and Gay Studies Reader, eds. Henry Abelove, Michele Aina Barale, and David M. Halperin (Routledge).
- John F Galliher, Wayne Breakhus, and David P Keys, 2004. Laud Humphreys: Prophet of Homosexuality and Sociology. Madison, WI: University of Wisconsin Press.
- William Leap, ed., 1999. Public Sex/Gay Space. New York: Columbia University Press.
- Lawrence Rosen, 1972. Review of "Tearoom Trade," in Journal of Marriage and the Family 34(2):382-384.
The Human Terrain System:
- Human Terrain System official website: http://humanterrainsystem.army.mil/, retrieved 11 February 2009.
- American Anthropological Association, 2007. American Anthropological Association Executive Board Statement on the Human Terrain System Project. Washington, DC: American Anthropological Association. Available online at http://www.aaanet.org/about/Policies/statements/Human-Terrain-System-Statement.cfm, retrieved 11 February 2009.
- American Anthropological Association, 1998. Code of Ethics of the American Anthropological Association. Washington, DC: American Anthropological Association. Available online at http://www.aaanet.org/committees/ethics/ethcode.htm, retrieved 11 February 2009.
- Roberto J. González, 2007. “Phoenix Reborn?” Anthropology Today 23(6):21-22.
- Roberto J. González, 2008. “Human terrain.” Anthropology Today 24(1): 21-26.
- Roberto J. González, 2007. “Towards mercenary anthropology? The new US Army counterinsurgency manual FM 3-24 and the military-anthropology complex.” Anthropology Today23(2):14-19.
- Peter Hinton, 2002. 'The "Thailand Controversy" Revisited.' The Australian Journal of Anthropology 13(2):155-177.
- Irving Horowitz, 1967. The Rise and Fall of Project Camelot: Studies in the Relationship Between Social Science and Practical Politics. Cambridge, MA: MIT Press.
- Hugh Gusterson and David H. Price, 2005. “Spies in our Midst.” Anthropology News 46(6):39-40.
- Montgomery McFate and Andrea Jackson, 2005. “An Organizational Solution for DOD’s Cultural Knowledge Needs.” Military Review July-August: 18-21.
- Montgomery McFate and Steve Fondacaro, 2008. “Cultural Knowledge and Common Sense.” Anthropology Today 24(1):27.
- David H. Price, 2008. Anthropological Intelligence: The Deployment and Neglect of American Anthropology in the Second World War. Duke University Press.
- For an extensive bibliography of writings on the Human Terrain System, see http://culturematters.wordpress.com/2008/08/21/annotated-bibliography-on-hts-minerva-and-prisp/, retrieved 11 February 2009.
Gang Leader for a Day:
- Sudhir Venkatesh, 2008. Gang Leader for a Day: A Rogue Sociologist Crosses the Line. New York: Allen Lane.
- Sudhir Venkatesh, 2000. American Project: The Rise and Fall of a Modern Ghetto. Cambridge, MA: Harvard University Press.
- Sudhir Venkatesh, 2006. Off the Books: The Underground Economy of the Urban Poor. Cambridge, MA: Harvard University Press.
- Sudhir Venkatesh and Steven Levitt, 2005. "Why Do Drug Dealers Still Live With Their Moms?". Chapter 3 of Freakonomics by Steven Levitt and Stephen Dubner. New York: William Morrow/ Harper Collins.
- Sudhir Ventakesh’s Freakonomics Blog for the New York Times: available online at http://freakonomics.blogs.nytimes.com/tag/sudhir-venkatesh/, retrieved 11 February 2009.
The AAA responds to US government searches of traveller laptops:
- American Anthropological Association, 2008. “AAA responds to laptop searches.” Washington, DC: American Anthropological Association. Available online at http://aaanewsinfo.blogspot.com/2008/07/aaa-responds-to-laptop-searches.html, retrieved 11 February 2009.
- American Anthropological Association, 2008. Letter to Michael Chertoff, U.S. Department of Homeland Security. Washington, DC: American Anthropological Association. Available online at http://www.aaanet.org/issues/upload/AAA-Letter-on-Homeland-Security-Searches.pdf, retrieved 11 February 2009.
The U.S. military uses Georges Condominas’ ethnographic data to assassinate people:
- David Price, 2007. "Anthropology as lamppost? A comment on the Counterinsurgency Field Manual." Anthropology Today 23(6).
- Georges Condominas, 1973. “Ethics and comfort: An ethnographer’s view of his profession.” 1972 Distinguished Lecture, American Anthropological Association. In: Annual Report, pp. 1-17. Washington, DC: American Anthropological Association.
The Kecak dance, tourism, the invention of tradition, and cultural authenticity:
- Walter Spies and Beryl de Zoete, 1938. Dance and Drama in Bali. London: Faber and Faber.
- Eric Hobsbawm and Terence Ranger, 1992. The Invention of Tradition. Cambridge: Cambridge University Press.
- L.L. Wynn, 2007. Pyramids and Nightclubs: A Travel-Ethnography of Arab and Western Imaginations of Egypt, from King Tut and a Colony of Atlantis to Rumors of Sex Orgies, Urban Legends about a Marauding Prince, and Blonde Belly Dancers. University of Texas Press.
- Edward M. Bruner, 2005. Culture on Tour: Ethnographies of Travel. Chicago: University of Chicago Press.
- Vincanne Adams, 1996. Tigers of the Snow and Other Virtual Sherpas: An Ethnography of Himalayan Encounters. Princeton, NJ: Princeton University Press.
- Quetzil E. Castañeda, 1996. In the Museum of Maya Culture: Touring Chichén Itzá. Minneapolis, London: University of Minnesota Press.
Paul Farmer and Partners in Health
- The Partners in Health website: http://www.pih.org/, retrieved 11 February 2009.
- Paul Farmer, 1999. Infections and Inequalities: The Modern Plagues. Berkeley, LA: University of California Press.
- Paul Farmer, 1999. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley, LA: University of California Press.
- Tracy Kidder, 2004. Mountains Beyond Mountains: The Quest of Paul Farmer, a Man Who Would Cure the World. New York: Random House.
Activist / advocacy anthropology
- Leigh Binford, 1996. The El Mozote Massacre: Anthropology and Human Rights. Tuscon: University of Arizona Press.
- Samuel R Cook, 2003. “Anthropological advocacy in historical perspective: the case of anthropologists and Virginia Indians.” Human Organization, Summer 2003.
- Andrew Gray and D. Heinen, 1990. “On Anthropological Advocacy.” Current Anthropology 31:387-390.
- Emilio F. Moran, ed., 1995. Transforming Societies, Transforming Anthropology. Ann Arbor: University of Michigan Press.
- Victoria Sanford and Asale Angel-Ajani, eds., 2006. Engaged Observer: Anthropology, Advocacy, and Activism. New Brunswick: Rutgers University Press.
- Trudy R Turner, ed., 2005. Biological Anthropology and ethics: from repatriation to genetic identity. State University of New York Press.
Sex in the field:
- Bronislaw Malinowski, 1987 (1929). The Sexual Life of Savages. Boston: Beacon Press.
- Ralph Bolton, 1995. “Tricks, Friends, and Lovers: Erotic Encounters in the Field.” In Kulick, D. & Willson, M. eds. Taboo: Sex, identity, and erotic subjectivity in anthropological fieldwork. Routledge, pp.140-167.
- Don Kulick and Margaret Willson, 1995. Taboo: Sex, identity, and erotic subjectivity in anthropological fieldwork. Routledge.
Indigenous intellectual property rights and anthropology:
- Laura Nader, 1999. “Secrecy in Science: Exploring University, Industry, and Government Relationships.” Delivered at MIT, Cambridge, MA, March 29, 1999. Available online at http://www.aaas.org/spp/secrecy/Presents/nader.htm, retrieved 11 February 2009.
The colonial encounter with Indigenous Australia:
- Jeffery Sissons, 2005. First peoples: Indigenous Cultures and Their Futures. Chicago, London: Reaktion Books/ University of Chicago Press.
- Max Charlesworth, 1997. Religious Inventions. Cambridge: Cambridge University Press.
- Lucien Levy-Bruhl, 1910. Les Fonctions mentales dans les sociétés inferieures. Paris: Felix Alcan.
- J Brook and JL Kohen, 1991. The Parramatta Native Institution and the Black Town: a history. Kensington, N.S.W. : New South Wales University Press
- Watkin Tench, 1996. 1788. The Text Publishing Company.
- Keith Vincent Smith, 2001. Bennelong. Kangaroo Press.
- Phillip Noyce, director, 2002. Rabbit Proof Fence (film).
The Stolen Generation:
- Warwick Anderson, 2003. The Cultivation of Whiteness: Science, Health and Racial Destiny in Australia. New York: Basic Books.
- Walter Baldwin Spencer, 'Preliminary Report on the Aborigines of the Northern Territory' as quoted in National Inquiry into the Separation of Aboriginal and Torres Strait Islander Children from their Families (see below for full citation).
- Australia Human Rights and Equal Opportunity Commission, 1997. Bringing Them Home: Report of the National Inquiry into the Separation of Aboriginal and Torres Strait Islander Children from their Families. Sydney: Human Rights and Equal Opportunity Commission.
- Reconciliation Australia, 2008. “Apology to stolen generations – questions and answers.” Available online at http://www.reconcile.org.au/getsmart/pages/sorry/sorry--faq.php, , retrieved 11 February 2009.
Ted Strehlow and debates over who owns heritage:
- Theodore Strehlow, 1971. Songs of Central Australia. Angus and Robertson.
- Central Land Council, Northern Territory, Australia. “Strehlow.” Available online at http://www.clc.org.au/ourculture/strehlow.asp, retrieved 11 February 2009.
- Janet Hawley, 1987. “The Strehlow Collection: Preserved in Vitriol.” Good Weekend, August 29, pp. 28−34, cited in Central Land Council, “Strehlow.” Available online at http://www.clc.org.au/ourculture/strehlow.asp, retrieved 11 February 2009.
- Philip Jones, 2002. “Strehlow, Theodor George Henry (1908 - 1978).” Australian Dictionary of Biography Volume 16, Melbourne University Press, pp 333-336.
- Michael Frankel & Company and Terri Janke, 1998. Our Culture: Our Future. Report on Australian Indigenous Cultural and Intellectual Property Rights. AIATSIS. Available online at http://www.frankellawyers.com.au/media/report/culture.pdf, retrieved 11 February 2009. http://www.austlii.edu.au/au/journals/AILR/1999/51.html .
Guidelines for ethical research in Indigenous communities:
- Australian Institute of Aboriginal and Torres Strait Islander Studies, 2000. Guidelines for Ethical Research in Indigenous Studies. Available online at http://www.aiatsis.gov.au/research_program/?a=2290, retrieved 11 February 2009.
- Australian National Health and Medical Research Council, 2003. Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research. Available online at http://www.nhmrc.gov.au/health_ethics/human/conduct/guidelines/_files/e52.pdf, retrieved 11 February 2009.
More on the ethics of research in Indigenous communities:
- Kristina Everett, 2008. “Too Much Information: when the burden of trust paralyses representation.” Aboriginal History Monograph 16.
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